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Integrated responses for communities needs affected by dangling syndrome in South Sudan

South Sudan



Aid type

Project type interventions

South Sudan



€ 1,792,990
€ 542,933


Specific goal of the project is indeed to deliver integrated curative and preventive care for PLWE-NS in the health systems and promotion of sustainable food security and livelihoods for resilience of people with disabilities in target communities. NS is a neurological disorder from the family of epilepsy. However, clinical case management is just one within the four spheres tackled by this intervention. Rural communities in South Sudan often associate epilepsy with false myth, causing stigmatisation which eventually leads to isolation of the children from society. Therefore, the project promotes the central role of communities to positively switch the negative paradigm on NS/epilepsy into pathways to inclusion.Among these entry points, the project promotes improved food security and livelihood for the families of children with epilepsy/NS. With the purpose of enhancing sustainability, the project advocates for the absorption of integrated approaches for people with epilepsy/NS in the national health systems by collecting and sharing epidemiological data with national and global stakeholders and by stimulating the discussion in the framework of the National Task Force for Neglected Tropical Diseases. Lastly, the project includes several provisions for donor education action so to remove the layer of silence that makes epilepsy/NS a neglected condition among the communities of the former Western Equatoria State. read more close


Type Name
Government AICS - Italian Agency for Cooperation and Development

Channel reported

Type Name
International NGO AMREF - African Medical and Research Foundation
Year Committed Used
2019 € 1,792,990 € 542,933

Project data

  • IATI IDXM-DAC-6-4-011898-01-4
  • Expected start date 2019/09/01
  • Completion date 2022/08/31
  • Sector Primary education
  • Finance type Aid grant excluding debt reorganisation
  • Flow type ODA
  • Bi/Multilateral Bilateral
  • Status Implementation

Policy markers

  • Gender Equality significant objective
  • Aid to Environment not targeted
  • Participatory Development/Good Governance significant objective
  • Trade Development not targeted
  • Aid Targeting the Objectives of the Convention on Biological Diversity not targeted
  • Aid Targeting the Objectives of the Framework Convention on Climate Change - Mitigation not targeted
  • Aid Targeting the Objectives of the Framework Convention on Climate Change - Adaptation not targeted
  • Aid Targeting the Objectives of the Convention to Combat Desertification not targeted
  • Reproductive, Maternal, Newborn and Child Health (RMNCH) principal objective