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Integrated responses for communities needs affected by dangling syndrome in South Sudan

South Sudan



€ Committed


South Sudan


Specific goal of the project is indeed to deliver integrated curative and preventive care for PLWE-NS in the health systems and promotion of sustainable food security and livelihoods for resilience of people with disabilities in target communities. NS is a neurological disorder from the family of epilepsy. However, clinical case management is just one within the four spheres tackled by this intervention. Rural communities in South Sudan often associate epilepsy with false myth, causing stigmatisation which eventually leads to isolation of the children from society. Therefore, the project promotes the central role of communities to positively switch the negative paradigm on NS/epilepsy into pathways to inclusion.Among these entry points, the project promotes improved food security and livelihood for the families of children with epilepsy/NS. With the purpose of enhancing sustainability, the project advocates for the absorption of integrated approaches for people with epilepsy/NS in the national health systems by collecting and sharing epidemiological data with national and global stakeholders and by stimulating the discussion in the framework of the National Task Force for Neglected Tropical Diseases. Lastly, the project includes several provisions for donor education action so to remove the layer of silence that makes epilepsy/NS a neglected condition among the communities of the former Western Equatoria State. read more close